Sydney, 18 November 2007

My little flower is wilting but still smiling. Last visit we could see that the specialist was intrigued, it was as though he'd never seen such tenacity before. So I thought I'd get a different perspective on what she'd been through and produced graphs and trendlines for the blood results over the past year. I also rang the CEO of a pharmaceutical company advertising a new drug, designed specifically for Lyndall's rather rare condition. We hope we're going to reach a position where we can afford to use this drug at least for 4 months - at that time we'll know if it is working. By all accounts, it will be a hard 4 months with many unwanted side effects and much driving back and forth to hospital. But it does offer some reprieve, not a total remission but at least we'll have her around for a bit longer - hope so.